“Don’t lose hope. When the sun goes down, the stars and moon come out.” – Unknown

Remembrance charm necklace showing picture of child who passed with quote that ays love you to the moon and backWhile the search for treatments and a cure for Batten Disease are always on the forefront of everyone’s mind, the reality of the disease and its current prognosis is exceptionally difficult to cope with. Batten Disease continues to take a toll on grieving families for countless years beyond the loss of their loved ones. The grief journey may be uniquely different for every single person, but we very much understand what it feels like to be walking…maybe sometimes crawling or even laying down…along the path. You are not alone! Together we are embracing one day…one sunset…one moonrise at a time. We have hope for strength and peace. We have hope for a cure.

In memory of loved ones lost to Batten Disease, we have joined forces with Powercharms to provide each family with either a beautiful memorial charm customized with the photo of their loved one and the quote “Love you to the moon and back.” This piece is our reminder to continue “Embracing Time, Hope & Adventure Now” and always, in honor and in memory of a precious life never to be forgotten. If you wish to receive a free charm, please contact us.

If you would like to give the gift of hope and support by donating the cost of a charm, please fill out the donation form and check the box indicating you wish to donate to “Moonbeams of Remembrance memorial charms to support and give hope to grieving families.”

Request A Remembrance Charm


    Partners in Rare Disease

    Graphic of the outline of the state of minnesota in orange and "rare disease" in blue
    rare disease logo with human hands in multiple colors
    Minnesota Council of Nonprofits