Nominate A Special Sibling!

The Mighty Moonbeam Award is being granted to siblings (youth to adult) for their role in “shining a ray of light” into the lives of their sibling(s) with Batten Disease. Siblings (“sibs”) experience all the ups and downs, the highs and lows, and everything in between that comes along with having a family member with a rare, life-limiting disease. Sibs may bear the weight of extra challenges, stress, divided parental attention, uncertainty for the future, and grief, but through it all they may also become fierce advocates, compassionate caregivers, resilient teammates, and empathetic confidants. Our Mighty Moonbeam Award aims to provide recognition to those sibs who could use an extra boost of acknowledgement through a token of simple joy.

Starting on International Batten Disease Awareness Day, June 9th, 2024, Ethan’s Reason will begin accepting nominations for siblings until 11:59 PM CST, Thursday, June 20th (the Summer Solstice!). Then, on Friday, June 21st (the Full Strawberry Moon!), we will randomly select 10 recipients for our Mighty Moonbeam Award from the pool of entrants and announce the recipients at 9:08 PM CST (peak full moon illumination!). Siblings who are selected will receive a gift card to help them embrace more summertime fun and adventure!

*Please complete one entry per sibling. A sibling is eligible no matter their age or where the family is at in their journey with Batten Disease, whether experiencing a new diagnosis or any stage of grief from the loss of their loved one(s).

****Nominations for the 2024 Mighty Moonbeam Award have now closed!**** 

Partners in Rare Disease

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Minnesota Council of Nonprofits