In Memory

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Moonbeams of Remembrance Charms

“Don’t lose hope. When the sun goes down, the stars and moon come out.”
While the search for treatments and a cure for Batten Disease are always on the forefront of everyone’s mind, the reality of the disease and its current prognosis is exceptionally difficult to cope with. Batten Disease continues to take a toll on grieving families for countless years beyond the loss of their loved ones. The grief journey may be uniquely different for every single person, but we very much understand what it feels like to be walking…maybe sometimes crawling or even laying down…along the path. You are not alone! Together we are embracing one day…one sunset…one moonrise at a time. We have hope for strength and peace. We have hope for a cure.

In memory of loved ones lost to Batten Disease, we have joined forces with Powercharms to provide each family with either a beautiful memorial charm customized with the photo of their loved one and the quote “Love you to the moon and back.” This piece is our reminder to continue “Embracing Time, Hope & Adventure Now” and always, in honor and in memory of a precious life never to be forgotten. If you wish to receive a free charm, please contact us at or in a private message on our Facebook page.

If you would like to give the gift of hope and support by donating the cost of a charm, please fill out the donation form here and check the box indicating you wish to donate to "Moonbeams of Remembrance memorial charms to support and give hope to grieving families."
Friends Embracing Adventure with Ethan’s Reason
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Ethan's Reason is a 501(c)(3) non-profit charitable organization. All donations made to Ethan's Reason are tax deductible to the full extent of the law.

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