New in 2024: Mighty Moonbeam Award!

Nominate A Special Sibling Today! After 10 years of selecting some amazing individuals upon which to bestow our Moonbeam Caregiver Award, we are now transitioning from honoring adult caregivers (from child care workers, to nurses, to paraprofessionals, to home health aides, and parents, etc.) to placing a spotlight on youth and/or adult siblings through our…

Carpe Costumes!

Have you seen these awesome adaptive costumes from Target and Disney? If you are searching for a special costume or even just fun accessories for your loved ones with Batten Disease, as well their siblings or bereaved siblings, who love dressing up (regardless of age!) please reach out to Ethan’s Reason via FB messenger, email,…

Man and boy shaving their head for batten disease

They BUZZED IT for Batten Disease!!!

They did it!!!! They BUZZED IT FOR BATTEN DISEASE!!! John and Luke joined forces to raise $2156 for Ethan’s Reason, and in holding up their end of the bargain for meeting and far-surpassing their $800 goal, they went to their 4:00 barber appointment this afternoon and let the hair fly!! Thank you to John and…