About Us

Ethan’s Reason is a 501(c)(3) organization that raises awareness and funds to support research for a cure for Batten Disease, while striving to facilitate ways of “embracing time, hope, and adventure now,” for children and families who have been affected by this rare disease.

Board Members

Kristine Davis, Founder of Ethan's Reason
Kristine Davies
Executive Director/Founder
Volunteer Director
Speech-Language Pathologist
Lino Lakes, MN
Eli Davies
Eli Davies
Volunteer Director
Technology Education Teacher
Lino Lakes, MN
Jean Durch, Secretary at Ethan's Reason
Jean Durch
Volunteer Director
Retired Health Officer and Public Health Director
Chippewa Falls, WI

Partners in Rare Disease

Graphic of the outline of the state of minnesota in orange and "rare disease" in blue
rare disease logo with human hands in multiple colors
Minnesota Council of Nonprofits