We are honored to officially announce our 8th Annual Moonbeam Caregiver Award recipient!
Congratulations to Vanessa Severance of Lake Villa, IL!
Vanessa is mother to Grant, a child with CLN2 Batten Disease, and his twin sister, Vivian. According to those who nominated Vanessa, Vanessa is “the perfect mama bear,” as a strong advocate for Grant’s care both within the medical and educational settings. She is quick to tackle the challenges that arise with Batten disease, and she is also rigorously involved in scheduling appointments for Grant’s care as well as balancing activities for his healthy twin sister. Vanessa has made significant sacrifices to support her family during COVID-19, yet despite the challenges over the past year, she continues to be the nucleus of her family, facing all of the challenges head-on. Vanessa is a “selfless, big-hearted” person who puts the needs of others ahead of her own, while still recognizing the importance of self-care for the mental, emotional and physical health necessary to support her family.
Once again, congratulations, Vanessa, and to ALL of this year’s nominees! We thank you “to the moon and back,” for striving to bring more “Time, Hope and Adventure” to Grant and all of the lives you have touched and will continue to touch in the future!
