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    • Ethan’s Story
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  • News & Events
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      • Caregiver Award Nomination
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Daily Archives: June 30, 2021

8th Annual Moonbeam Caregiver Award Recipient Selected

FundraisingBy Kristine DaviesJune 30, 2021

We are honored to officially announce our 8th Annual Moonbeam Caregiver Award recipient! Congratulations to Vanessa Severance of Lake Villa, IL! Vanessa is mother to Grant, a child with CLN2 Batten Disease, and his twin sister, Vivian. According to those who nominated Vanessa, Vanessa is “the perfect mama bear,” as a strong advocate for Grant’s…

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